Tag Archives: rare disease

Flexibility is usually described as a positive trait in children. They might be able to do party tricks like bend their pinky backwards or always hit a split in gymnastics. But if those skills come with chronic pain, your child could be living with a disability without even knowing it. …

When you hear hoof beats, think horses—not zebras. This is what doctors are taught during their training, meaning that the first and more likely diagnosis is the one they should be thinking about. But what about when it really is a zebra? This was the case for Inez Vazquez. Her …

  A child with a rare disease can feel misunderstood and alone. When it comes to forming a community and making connections, awareness goes a long way. Rare Disease Day was created with that community in mind. Since 2008, it has been a globally-coordinated effort to bolster an international community …