A recent trailblazing study showed promising results for delaying and preventing seizures in children and infants with Sturge-Weber Syndrome (SWS) thanks to a new pre-symptomatic treatment. According to Dr. Anne Comi, children with the condition who have early seizures have the highest risk for poor outcomes neurologically. Comi is the …
Read More »Tag Archives: Kennedy Krieger Institute
October Roundup: Foodie Fundraisers
Bennett Blazers Named Champions Kennedy Krieger Institute’s Bennet Blazers have a lot to celebrate after a season where they competed against nearly 400 athletes from 43 teams across the country. The adaptive sports team was crowned national champions at the 66th annual Hartford Nationals, Move United’s largest and longest-running championship …
Read More »Wow, You’re Really Flexible: What Ehlers-Danlos Syndrome Is (And Isn’t)
Flexibility is usually described as a positive trait in children. They might be able to do party tricks like bend their pinky backwards or always hit a split in gymnastics. But if those skills come with chronic pain, your child could be living with a disability without even knowing it. …
Read More »B’More Inclusive: What is Rare?
When you hear hoof beats, think horses—not zebras. This is what doctors are taught during their training, meaning that the first and more likely diagnosis is the one they should be thinking about. But what about when it really is a zebra? This was the case for Inez Vazquez. Her …
Read More »A Compassionate Response to a Caregiving Crisis
A typical week for Melissa Hanna might include doctor’s appointments; occupational, physical or speech therapies and learning as she goes. She is a foster parent for two medically-complex children younger than age 1 through Kennedy Krieger Institute’s Therapeutic Foster Care program. This program provides a hands-on approach to foster …
Read More »Rare Disease Day: Q&A with Dr. Erika Augustine
A child with a rare disease can feel misunderstood and alone. When it comes to forming a community and making connections, awareness goes a long way. Rare Disease Day was created with that community in mind. Since 2008, it has been a globally-coordinated effort to bolster an international community …
Read More »Kennedy Krieger Institute’s Festival of Trees 2021
The Kennedy Krieger Institute’s Festival of Trees returns this holiday season at the Maryland State Fairgrounds in Timonium. Visitors can drop by from Nov. 26 through Nov. 28 to donate items for the toy drive. The traditional sale of more than 500 trees, wreaths and gingerbread houses decorated by …
Read More »Parent You Should Know: Dr. Bradley Schlaggar
Dr. Bradley Schlaggar is shown with his wife, Dr. Hristina Schlaggar, real estate agent at Keller Williams Legacy and adjunct associate professor of psychiatry at Washington University School of Medicine in St. Louis, and children Simeon, 15, and Lena, 13. | Photo courtesy of Anna Harbom What’s the hardest part …
Read More »Why Telemedicine Is Here to Stay
Another way that the coronavirus has changed our world ? Telemedicine. Prior to this year, most of us had never been on a video call with our physicians. But with stay-at-home orders and limited patient hours at many physician practices this spring, parents experienced Zoom or Skype appointments with obstetricians, …
Read More »Mom Life: Michele Mueller
Meet this month’s Mom Life interview, Michele Mueller. Title: Director of Special Events at Kennedy Krieger Institute Lives: Parkville, Maryland Family: Husband, Larry; son Tripp, age 2 ½; dog, Crème Puff (aka Cremey) Five things you can’t live without? My cell phone for the camera and photos; my calendar, because …
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